Other Disabilities

To learn more about any book, just click on the title below.

(*Books marked with an asterisk are reference material only).

Brain Injury Network of South Australia Inc. Information Kit

Prepared in consultation with Dawn Brooks, Executive Director, The Brain Injury Network of South Australia Inc. and the Committee of Management; 1995 ISBN 0-646-24078-1

Most severe head injuries are the result of motor vehicle accidents. Recent statistics suggest that these figures are reducing, along with the death toll. This is largely due to changes in community attitudes towards alcohol, seat belts and speed. It is our young adults who are most at risk, with casualty rates four times higher in the 16 to 19 year age group than those over 25 years.

These young victims of head injury have a long period of rehabilitation and lifestyle adjustment ahead of them, but the true impact of traumatic brain injry is known to their families. They must cope with uncertainty, unfamiliar environments and enormous stress. Rehabilitation is often the least dramatic yet most difficult phase.

Help and support during these distressing times is available.

The books in this kit have been produced to provide information for families, health care professionals and the wider community. A source for those who want to understand, more fully, the needs of people who have experienced brain injury.

The series contains:

  1. Brain Injury
  2. Acute Care
  3. Children and Brain Injury
  4. Minor Brain Injury
  5. Rehabilitation
  6. Community Services and Supports
  7. Advocacy and Information
  8. Legal and Insurance
  9. Sexuality
  10. Grief
  11. Glossary

Disability: A guide for health professionals

Edited by John Annison, Josephine Jenkinson, William Sparrow & Elizabeth Bethune; Victoria, Australia: Nelson Thompson Learning; 1996 ISBN 0-17-009078-7

This new Australian text provides a comprehensive introduction to the field of disability studies from the perspective of the health care provider and the multidisciplinary health care team. The book’s broad focus looks at disabilities across the life span. It covers developmental and acquired physical and mental disabilities, as well as rehabilitation issues. Comprehensive coverage of Australian government policy, legislation and service provision is provided. Issues especially important for practice throughout the 1990s are covered, including client empowerment and independence, family and community care, deinstitutionalisation and the changing face of residential care.

Disability in Australia: Exposing a social apartheid

Gerard Goggin & Christopher Newell; Sydney: University of NSW Press; 2004 ISBN 0-868407194

This breakthrough book dares to name and explore a hidden blight in society: the routine, daily and oppressive treatment of people with disabilities. Drawing on a wide range of case studies from health and welfare, sport, biotechnology, deinstitutionalisation, political life and the treatment of refugees, this thoughtful, lively and provocative work puts disability firmly on the agenda.

A rare and timely audit, this book shows that disability is central to society, media and culture – a matter of human rights and justice that should concern us all.

Gerontology: A multidisciplinary approach

Edited by Victor Minichiello, Loris Alexander & Deirdre Jones; Sydney, Australia: Prentice Hall; 1992 ISBN 0-7248-0615-6

This is a comprehensive book about ageing. It is written for students, health professionals, other service providers and members of the community who are interested in the process of ageing.

The book takes a multidisciplinary and multiprofessional approach to professional practice and the analysis of public policy issues. It introduces readers to biological, sociological and psychological aspects of ageing which have an impact on the health, quality of life and well being of people in their later years.

The authors write from the perspective of the promotion of health and choice for older people in the community, and contest negative stereotypes of old age.

Hepatitis B as an occupational hazard {European Occupational Health Series No. 8}

Viral Hepatitis Prevention Board Secretariat; Denmark; WHO Regional Office for Europe; 1994

Hepatitis B is a most important infectious occupational hazard in the workplace for several reasons. It affects many more workers than infections of comparable severity, has serious effects on individuals and their work colleagues, and has serious economic consequences.

This book discusses the disease, occupational risks, prevention strategies and implementation of prevention programmes.

HepatoCite International Hepatitis update {Issue 4 – Special feature, Hepatitis B as an occupational disease}

Guest editorials by Finn Hardt and Susan E. Harwood; Chester, England: ADIS International; 1990

The single aim of this book is to document and share the experiences, expertise and knowledge of existing services for people with disability in the Pacific Islands.

It is the author’s goal that this book will be but one step in raising the expectations of the island communities, and those interested in island affairs, to the true potential of the individual with disability.

Into the Streets – a book by and for disabled people

Victorian disabled people’s self-help groups and their friends; Victoria, Australia: Disability Resource Centre; 1981 ISBN 0-959-3828-01

Mark Priestly addresses the relationship between the politics of disability and community care policies. Guided by his direct work with representatives of the disabled people’s movement, he argues that although the ideas behind social policy and practice have started to reflect values such as participation, integration and equality, the current policy and its implementation often undermine these goals. ‘Community care’ still contributes to the view of disabled people as dependent and different, thus reinforcing their social exclusion and marginalisation.

This book encourages health and welfare professionals and policy makers to start working much more closely with disabled people themselves. Priestly argues that involving disabled people in the design and production of their own welfare will break down the disabling boundary between service ‘provider’ and ‘user’ and will result in the reality of integrated living. He presents practical suggestions for the changes necessary for the proposed reorganisation of service provision which will redefine direct work with disabled people.

Living, Striving, Achieving: An Australian Perspective on Disability

Edited by Richard Brown; Newcastle, Australia: Life Activities; 2004 ISBN 0-9756066-0-3

This book introduces a diverse range of topics relevant to those working and studying in the disability sector. The authors, currently working in the disability sector, come from a variety of backgrounds including welfare, teaching, counselling and psychology, and offer a wealth of experience both personal and professional. This book presents an opportunity to explore key issues such as grief and loss, aging, gambling and living skills and examine them in the context of disability.

This book represents the thoughts, ideas, methods, and reflections of the staff and associates of Life Activities Inc. – a not for profit organisation which supports people with disability or who are disadvantage. This book does not attempt to answer all the questions or address the myriad aspects of supporting people with disability. It is a snapshot of life at the interface of theory and practice. As such, this book is a very good introduction to the field of disability support.

MS – The mystery disease

National Multiple Sclerosis Society of Australia; Australia: National Multiple Sclerosis Society of Australia; 1996 ISBN 0-9586902-0-0

Most small not-for-profit organisations are under-resourced and under-skilled. Many are barely keeping their heads above water now the emphasis is on contracting out work in both the public and private sectors. Most are looking for help to cope with new demands for accountability and performance assessment.

This book offers a broad introduction to the management issues faced by human service organisations, particularly small ones. It covers the basics of managing different roles and skills, staff and volunteer recruitment, maximising people’s contributions, managing financial and physical resources and managing change. The approach is practical and the text is illustrated with real examples.

This book is an essential reference for students, board members, managers and others working in the human services sector.

Multiple Sclerosis: A booklet for the information of patients and the patient’s family

Westmead Neurological Centre; Edinburgh, UK: Churchill Livingstone; 1999 ISBN 0-443-05934-9

Health care workers are reporting an increasing incidence of violence and aggression from patients/clients and their families. Understanding the role of aggression in society, and recognising how it can be controlled and managed, requires an awareness that violence and aggression are fundamental human characteristics. Normally under control, they can flare dramatically under the influences of stresses like illness, worry and grief.

This book helps health care workers understand how aggression can arise and how it can develop into violence. It follows the developmental path of violence, taking the reader from the phase of relative normality through to the phase of attack. While exploring the enormous body of literature and theory relating to violence and aggression, it concentrates on the practicalities of management, with a focus on prevention.

The authors are nurses with long experience of managing violent and aggressive people. The book helps health care workers to move beyond their fear of violence to a recognition that they can manage it appropriately, safely, and with maximum positive outcomes for all involved.

Oliver Twist has asked for more – The politics and practice of getting justice for people with disabilities

Ian Parsons with forward by Moira Rayner; Victoria, Australia: Villamanta Publishing Service; 1994 ISBN 064616368X

This book is about getting justice for people with disabilities. It is meant to be used by anyone who is concerned about the unfair ways in which people with disabilities are treated in Australia and who is wanting to do something to change this.

It is also a book about power – and about the reasons why people with disabilities are so often without it. Why is it a disadvantage to have a lower than average IQ? Why is it a disadvantage to have cerebral palsy or schizophrenia or acquired brain damage? Why is it that people with disabilities are so often forced to rely on large, and usually under-resourced, welfare industries for even their most ordinary needs?

This book asks, and attempts to answer, these questions in ways that have very real implications for anyone who is concerned with social justice in modern Australian society.

Our life, our say! A good practice guide to young disabled people’s peer mentoring/support

Julie Bethell; Brighton, UK: Joseph Rowntree Foundation; 2003 ISBN 1841960551

This report is a good practice guide based on an evaluation of an action research project that was designed to support young disabled people making the transition towards adulthood and inclusive living. It draws on the experience of the Young Disabled People’s Peer Mentoring Project based within Greater Manchester Coalition of Disabled People (GMCDP).

This guide is based on the views and experiences of young disabled people, their friends, families, and the professionals, organisations and services who support them in making the transition to adulthood..

The guide aims to:

  1. Give advice to young disabled people and others on how to start their own project
  2. Highlight the benefits of self-organisation for youth groups
  3. Look at the kind of values and practical resources necessary to make sure the groups succeed
  4. Help support workers and organisations let go of control and involve young disabled people at every level of organisations
  5. Show workers and organisations how to facilitate disabled people’s self-directed groups

With a range of practical suggestions and tips, the guide highlights:

  1. The barriers that young disabled people face
  2. What should be done to address those barriers
  3. The right approach to setting up similar projects
  4. Who needs to be involved in making a project genuinely inclusive
  5. The practical aspects of setting up a project – transport, venue, administration, accessibility of information

Physical and Neurological Conditions: Resource Manual

Neurological Council of South Australia Inc.; South Australia: Neurological Council of South Australia; 2005

This manual has a wide variety of information about physical and neurological conditions. There is information about specific conditions and sub-conditions. There is also a variety of information about common features such as genetics, the nervous system, ataxia and spasticity. Further information on allied health disciplines is also included.

PS This accident has changed everyone and everything: A guide to understanding head injury

Kathleen Griffiths PhD; Melbourne, Australia: The Australian Psychological Society, Shannon Books; 1997 ISBN 0-909881-12-X

Head injury is the leading cause of death in people under 45. Survivors often suffer debilitating changes in their mental abilities and personality. These changes may wreak havoc with the lives of the injured and their family, as people struggle to understand exactly what is happening.

Despite this, the plight of people with head injuries, their families, friends and carers, is often poorly understood by both professionals and the person on the street.

This book explains in clear, readable language what head injury is, what happens during treatment following injury, and how to cope with the longer term effects of head injury.

If you have a family member, friend, patient, or client who has suffered a head injury, then reading this book will help.

This book will not magically solve the problems of head injury sufferers, but will provide essential information to help you understand what is happening and realise that your own reactions and feelings are normal.

Quentin – A story of a life salvaged by hope and unflinching courage

Kerry Kenihan; Victoria, Australia: Penguin Books; 1985 ISBN 0-14-007008-7

Quentin Kenihan’s bones are as fragile as eggshells. Born with severe osteogenesis imperfect, he has experienced, in his ten short years [1985], at least 160 fractures.

Until he was four, his parents accepted specialists’ opinions that Quentin would never walk – mere gravity would shatter his bones. It was claimed that nothing could be done for him. Four years later, not only had Quentin achieved mobility, he had developed into an intelligent, witty and stubbornly independent boy.

Quentin’s story is inspiring for its courage and determination. His mothers frank telling of it gives a moving insight into the dilemmas and hopes of families with disabled children.

Roads to Recovery: Inspiring stories from survivors of illness, accident and loss

Pamela Traynor; NSW, Australia: Allen & Unwin 1997 ISBN 1-86448-195-1

Why does one person recover from serious illness or accident when, in very similar circumstances, another does not? This is the question which led Pamela Traynor to the people whose inspirational stories are told in this book. Their accounts of terrible accidents, illnesses – cancer and schizophrenia – and loss through death or torture reveal amazing determination on their part, and the sustaining power of loving supporters.

How does a quadriplegic at sixteen become a highly successful business executive by the age of forty? How does a plane crash victim told “you’ll never walk again” go on to become a fully qualified pilot? What are the mental strengths needed to fight and conquer cancer? How can victims of torture and persecution rebuild their lives and their optimism about human nature?

The eloquent stories told in this book answer some of these questions, and further insights come from the views of medical experts on what is still a mysterious and complex area. The result is a book which will both inspire and inform us all, and specifically those whose lives have been touched by illness, accident or loss.

Roll Models: People who live successfully following spinal cord injury and how they do it

Richard Holicky; Victoria, BC, Canada: Trafford Publishing; 2004 ISBN 1-4120-4022-1

Why do some spinal cord injury survivors succeed after injury and others spiral into inactivity and depression? Richard Holicky, himself a survivor, talks to spinal cord injured people throughout the country and comes up with answers.

What do these people have in common? What enables them to be happy? This book contains profiles of 53 people who are successfully coping with spinal cord injury, and examines how they’ve met the challenges of living with paralysis and its impact on their lives. Their stories are accompanied by an analysis of how they dealt with fears, obstacles, and problems common to such life altering circumstances. This book is filled with questions, answers, information and resources, all the essential building blocks necessary to make success in the broader sense – work, marriage, material comfort – a reality.

Spina Bifida: A handbook for parents

The Spina Bifida Association of South Australia; Netley, SA, Australia: Griffin Press; 1982

Why do some spinal cord injury survivors succeed after injury and others spiral into inactivity and depression? Richard Holicky, himself a survivor, talks to spinal cord injured people throughout the country and comes up with answers.

What do these people have in common? What enables them to be happy? This book contains profiles of 53 people who are successfully coping with spinal cord injury, and examines how they’ve met the challenges of living with paralysis and its impact on their lives. Their stories are accompanied by an analysis of how they dealt with fears, obstacles, and problems common to such life altering circumstances. This book is filled with questions, answers, information and resources, all the essential building blocks necessary to make success in the broader sense – work, marriage, material comfort – a reality.

Your Health Rights: The essential guide for every Australian – A Choice Handbook

Australian Consumers Association; Sydney, NSW, Australia: APC; 1988 ISBN 0-900882-52-2

Every Australian uses the health system. But few of us know what our rights are in dealing with all kinds of health professionals. How can we ensure that our best interests are always protected and that our treatment is always clearly explained? This new book from the Australian Consumers Association, publishers of CHOICE magazine, clearly and simply explains what every Australian needs to know to be confident when dealing with the medical system. This book provides detailed information on how to deal with complex problems such as:

  1. Choosing a doctor
  2. Using medicines safely
  3. Choosing a hospital or nursing home
  4. Making complaints
  5. Consenting to treatment
  6. Protecting the best interests of you and your family
  7. Paying for health care
  8. Coping with long-term illness

Do you have a right to die? Can you refuse treatment? Are you entitled to access your medical records? This book explains the consumer’s position in all States and Territories on these and many other vital medical questions.